The governance of genetic information : who decides? / edited by Heather Widdows and Caroline Mullen.

Cambridge ; New York : Cambridge University Press, 2009.

72220

Genetic screening -- Moral and ethical aspects.

Genetic screening -- Government policy.

Privacy, Right of.

Medical records -- Access control.

Section I. Problematising governance of genetic information

1. The medium and the message : tissue samples, genetic information, and data protection legislation

2. Me, myself, I : against narcissism in the governance of genetic information

3. Decisions, consent and expectations of the individual

Section II. Ethical frameworks of governance

4. Constructing communal models of governance : collectives of individuals or distinct ethical loci?

5. Rights, responsibility and stewardship : beyond consent

6. Who decides what? : relational ethics, genetics and well-being

Section III. Redesigning governance

7. Involving publics in biobank governance : moving beyond existing approaches

8. Genetic information and public opinion

9. Harmonisation and standardisation in ethics and governance : conceptual and practical challenges.

Includes bibliographical references and index.

9780521509916

xi, 235 p. ; 24 cm